Watch the video about Shelly’s PCT!

In less than a month, Scott will begin his journey of 2,663 miles with a single step!


The Upside of ALS

No doubt ALS has been my greatest challenge. No need to list the losses and fears.

Yet, there’s an immeasurable upside. I’ve met the most courageous, generous, and loving people that I never would have met without ALS. When you or a loved one is faced with an untreatable, debilitating disease, you have permission to let go of your inhibiting filters and simply love. It’s demonstrated by people with ALS as they courageously face each day with grace and encourage others to do the same. It’s demonstrated by caregivers and family members who sacrifice everything to give their loved ones what they need. It’s demonstrated by service providers, health care professionals, and scientists who are whole-heartedly devoted to finding an effective treatment or cure.

And the upside of ALS can show up in unexpected ways.

Let me introduce you to a family friend, Scott Gnile. We met Scott and his wife Kelli at church a few years ago. My first impression was that they humbly lived out the love and generosity of Christ.

We met for dinner a few months ago and Scott shared his BHAG (Big Hairy Audacious Goal) with us. He is going to hike 2,633 miles of the Pacific Crest Trail (PCT) in 2016. Why? He wants to hike the PCT in honor of those who have ALS and can’t, raising awareness and money for research along the way. Wow. It’s not very often I’m rendered speechless. Scott is calling his hike, “Shelly’s PCT.” He will ask fellow hikers to hashtag photographs with #ShellysPCT so we can all share in the beauty of the hike. Opposite worlds come together with extreme hikers supporting those paralyzed by ALS.  The PCT and ALS have crossed paths before. I just read that Greg Hummel, a PCT trailblazer died from ALS.

We are working with the ALS Therapy Development Institute to create a social media campaign raising awareness and money for research. Their Precision Medicine Program is my greatest hope for an effective treatment in my lifetime.

Here are a few more important links:
Donate to Shelly’s PCT
Like our page on Facebook
Follow Scott’s Blog
Follow Shelly’s Blog and CaringBridge site
Follow us on Twitter: @ShellysPCT
Follow us on Instagram: #ShellysPCT

Please like, share and follow us on Facebook, Instagram, and Twitter. This is going to be epic!

I’m Forgiven and Free — Please go on this hike with me!

Scott Hike mountains